Tag Archives: ableism

I’d Rather Be a Cyborg…: The Unexpected Inter-sectional Feminism of Losing My Hearing

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20170823_143656 (1)My hearing has never been good. Normal hearing is something I’ve had to work to maintain all my life with surgeries and procedures in doctors’ offices. Over time, I’ve progressed to having irretrievable below-normal hearing in the upper frequencies on my left side. I am hard of hearing, and as I age I will only become more so.

Knowing this, accepting it about myself is important in situations where faking normal hearing could cause problems, like when I’m standing in a noisy airport security line, talking to an officer, a fellow short-lady, through a pane of glass taller than both of us. Instead of gambling, guessing what she wants, I say, “Sorry, I’m hard of hearing,” explaining that I can’t meet her halfway and she needs to bear more of the burden of communication than she’s used to—which really just means she has to stop being verbally lazy and ask me about the yoghurt I forgot in my bag in a louder, clearer voice. The upper frequencies–voices of women and children–are less heard, and until they are, they need to be louder. The sexism built into my language tells me to call voices like these “shrill,” a word meant to shame people into silence, but a word which, for people like me, simply means “audible.”

My deaf sister-in-law says I need to stop introducing my condition with “Sorry…” Wheelchair users aren’t expected to stare down flights of stairs and tell anyone they’re sorry. I get it, and I’m working on it. I’ve even realized why I’ve always suffered a little stab of anger whenever someone doesn’t hear me and lets me know by saying, “Sorry.” The implication that anyone needs to apologize for not hearing—or not seeing or not walking—is ableist and backward. The idea that intruding on able-bodied privilege with requests that accommodations be made to social and physical structures that dismiss and deny special needs is something that demands an apology–I hate it. I do feel sorrow for the decline in my hearing. But I’m not responsible for it. No one owes anyone else a normal level of natural ability in anything, including hearing.

Anyways…

I noticed the decline in my hearing once I switched from working at home to studying in a large, crowded university—especially when my studies are in a new language where the skills and strategies I use in English to guess and gloss over what I don’t hear can’t be applied. While my Chinese reading and writing is quite good for someone at my level, my ability to understand what I’m listening to is bad. By the end of the month I spent living in China this summer, I realized that, some of the time, when I was giving my stock reply of “I can’t understand what you’re saying” what I really meant was “I can’t hear what you’re saying.” Coming home to my English-speaking family, I saw for the first time how much trouble I was having receiving all kinds of messages, including ones in my native language.

The audiology clinic asked me to bring an able-bodied handler with me to my hearing test, but I rebelled and came alone. The appointment was a sad trip back in time to when I was seven years old and facing my below-average hearing for the first time. Strangely enough the list of words I had to repeat in the soundproof booth hadn’t changed in all that time. The list was an odd, old-fashioned collection—and old-fashioned means sexist and Anglo-centric. The words were meant to be recognizable to elderly men. “Whitewash, inkwell, cowboy, baseball.” I asked, “Do you have lists in any languages other than English?” No, of course they didn’t. English was confounding my test results. Once I realized the list of words was taken from Tom Sawyer, once I knew I was amassing a set with a theme, I could guess them even more easily than usual.

I’ve never worn eyeglasses, and my childhood surgeries completely extinguished any interest in getting my ears pierced so I’m just now learning to tolerate a foreign object against my ear. My hearing aid penetrates much further into my head than I expected. It’s an infiltration. “I’m a cyborg,” I told the technician–not a word from the clinic’s list.

Back at our house, with my new circuitry, my youngest son was relieved I hadn’t come back with a hole drilled in my skull, and my oldest son congratulated me on my “augmented reality.” I smirked. “You mean, like your glasses?” That’s all a hearing aid should be for someone outside of Deaf culture who comes to be hard of hearing later in life. It’s eyeglasses for the ears, the restoration of a baseline. Cyborg-me knows it but does not know how to believe it yet, and sits by herself flexing her jaw, tipping the electronic node against the inside of her post-human head.

The Idiom is Actually “Raising Children”

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From a sidewalk in Galati, Romania, where one of my adult sons lives

I think I understand why an article titled “Quit Doing These 8 Things for Your Teen This Year if You Want to Raise an Adult” keeps appearing in my Facebook newsfeed this week. It’s about a parent’s choice to refuse to do things like waking her kids up in the morning, packing their lunches, dashing forgotten items to school, helping with projects, and other things most teenagers—people the same age our great-great grandparents were when they were getting married and raising kids and crops of their own—could probably handle without adult intervention. I get it. Kids can become a make-work project, getting them to acquire competence is an important part of parenting, it isn’t easy, it isn’t comfortable, yes, yes, yes.

I understand the message but it is badly presented in this article. It’s not just that the writer’s lack of insight into her own ableism is downright offensive. It’s not just that teenagers grow at different rates, including at rates complicated by developmental delays. Some of them aren’t neurotypical, or are struggling with mood or anxiety disorders that affect their abilities to focus, remember details, and harness the ole get-up-and-go. The article’s bad presentation is all of this and more.

I’m slightly farther ahead in the parenting lifecycle than the author of the article. I have two children who have become adults in spite of me waking them up and making their lunches every day until they graduated from high school. Now that they’re out in the world—one of them in the third year of a computing science degree at a large research university, and the other across the Atlantic Ocean serving as a volunteer in a rough industrial town—one of the things I don’t worry about is whether they will get up in the morning now that I’m not waking them myself. They do. They just do.

No, what I do worry about are the same things I’ve always worried about. I worry about whether they’ll be kind to people, generous with their time and energy. I worry about whether they’ll help people out and offer second chances when dumb mistakes are made, even if those mistakes have bothered them. I worry about them being able to resist petty power struggles, and being prepared to inconvenience themselves in the interest of making life better for other people, particularly people who are smaller and weaker than them. I hope they remember me and their father inconveniencing ourselves to care for them when they were young and weak. To raise a person who doesn’t remember being treated like this is to risk raising someone who doesn’t know to treat other people like this. It’s priming someone to be a problem partner, a problem parent, a problem caregiver for their own parents when the time comes for us to grow old, losing track of our time and possessions, needing someone to patiently and helpfully oversee our daily activities. The tables that we’re sitting at with our children at this early stage in our family lives—they turn.

There’s more still. Not all parents are equally well-equipped for parenting. Some of us work, run businesses, parent alone, are simultaneously caring for older generations, cope with illnesses of our own, spend years in pregnancy and breastfeeding modes that make us less than constantly available to our kids. Maybe what I’m saying when I walk into my fifteen-year-old’s bedroom while it’s still dark and pat him on the arm until he pats my hand back, telling me without a word that he’s awake, isn’t that he’s cute and I want him to stay my baby forever. Maybe I’m saying I realize I never spent an entire week planning and executing a lavish birthday party for him, so I hope he can accept my love in these small installments offered in silence every morning. Maybe what I was saying when I chucked that daily granola bar and sandwich into a brown bag for my eighteen-year-old is how sorry I am that I was too busy with his baby brothers to ever be a parent volunteer in his classroom while he was at school, so I hope he’ll accept rations of food I paid for and assembled with my own hands instead.

It’s trite to spell it out—not to mention terribly ironic to have to write it in response to an article that repeatedly condemns “judging” among parents–but clearly, parents can only offer their kids resources they actually have. Even then, those resources—time, money, talents, health and wellness–have to be tailored to meet the needs and characters of individual kids, rather than being applied as meme-ish rules of thumb pasted under bossy headlines. We don’t, contrary to what the article’s title says “raise an adult.” The idiom is actually that we raise children. Unless kids die young, they will become adults. There’s nothing their parents can do to stop that and there’s no need to quit anything but worrying about it. What’s more important than whether they’ll be adults is what kinds of adult behaviours we’re modelling for them.